Health-related quality of life of patients with haemophilia: a cross-sectional survey in the Northeast of ChinaJinyu Niu, Liangwen Ning, Qiao Zhang, Ze Liu, Yi Ma, Xiaoxue Xu, Qunhong Wu, Yanhua Hao, Yu Cui, Chaojie Liu
1 February 2022
Twelve-month prevalence of haemarthrosis and joint disease using the Haemophilia Joint Health score: evaluation of the UK National Haemophilia Database and Haemtrack patient reported data: an observational studyRichard A Wilkins, David Stephensen, Heidi Siddle, Martin J Scott, Hua Xiang, Elizabeth Horn, Ben Palmer, Graham J Chapman, Michael Richards, Rebecca Walwyn, Anthony Redmond
12 January 2022
Health-related quality of life in adults treated for paediatric acute lymphoblastic leukaemia: a cross-sectional and longitudinal cohort studyKatarina Aili, Susann Arvidsson, Maria Olsson, Marianne Jarfelt, Jens Nygren
7 January 2022
Cross-sectional study on knowledge, attitude and practice towards thalassaemia among Indonesian youthPustika Amalia Wahidiyat, Edward Christopher Yo, Muhammad Maulana Wildani, Visabella Rizky Triatmono, Mikhael Yosia
3 December 2021
Protocol for a multicentre, parallel-group, open-label randomised controlled trial comparing ferric carboxymaltose with the standard of care in anaemic Malawian pregnant women: the REVAMP trialMartin N Mwangi, Glory Mzembe, Ernest Moya, Sabine Braat, Rebecca Harding, Bjarne Robberstad, Julie Simpson, William Stones, Stephen Rogerson, Kabeya Biselele, Jobiba Chinkhumba, Leila Larson, Ricardo Ataíde, Kamija S Phiri, Sant-Rayn Pasricha
23 November 2021
Health care utilisation following childhood acute lymphoblastic leukaemia: a population-based matched cohort studyKaren Schow Jensen, Birgitte Klug Albertsen, Henrik Schrøder, Alina Zalounina Falborg, Kjeld Schmiegelow, Steen Rosthøj, Michael Thude Callesen, Peter Vedsted
22 November 2021
Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USAMatthew P Smeltzer, Kristen E Howell, Marsha Treadwell, Liliana Preiss, Allison A King, Jeffrey A Glassberg, Paula Tanabe, Sherif M Badawy, Lisa DiMartino, Robert Gibson, Julie Kanter, Lisa M Klesges, Jane S Hankins,
17 November 2021
Design of the HEM-POWR study: a prospective, observational study of real-world treatment with damoctocog alfa pegol in patients with haemophilia AMartin Sanabria, María Teresa Álvarez Román, Giancarlo Castaman, Maissaa Janbain, Tadashi Matsushita, Karina Meijer, Johannes Oldenburg, Sabine Friedl, M T Reding
2 September 2021
Phase 3 randomised trial of eltrombopag versus standard first-line pharmacological management for newly diagnosed immune thrombocytopaenia (ITP) in children: study protocolKristin A Shimano, Rachael F Grace, Jenny M Despotovic, Ellis J Neufeld, Robert J Klaassen, Carolyn M Bennett, Clement Ma, Wendy B London, Cindy Neunert
27 August 2021
Health care utilisation preceding relapse or second malignant neoplasm after childhood acute lymphoblastic leukaemia: a population-based matched cohort studyKaren Schow Jensen, Birgitte Klug Albertsen, Henrik Schrøder, Alina Zalounina Falborg, Kjeld Schmiegelow, Steen Rosthøj, Michael Thude Callesen, Peter Vedsted
19 August 2021